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Figuring out autoimmune disease where to start?

Autoimmune Diseases | Last Active: 6 hours ago | Replies (17)

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@cberner85

Oh, did you get relief with the prednisone and later able to wean off and heal?

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Replies to "Oh, did you get relief with the prednisone and later able to wean off and heal?"

Yes . I was diagnosed in May 2021. It took me about 6 months to figure out what it was. I had xrays and ct scans. All they showed was inflammation. Then I actually self diagnosed myself just as your doing. I was 68. I tried prednisone and was better in 4 hours. Then I had to get Mayo to agree. They did mostly by ruling out everything else. I can take years for some to burn out the PMR. I started on 20mg and was able to decrease to 10mg within a week. Then I spent 6 months at 10mg then weaned to zero over the next month. I understood the pitfalls taking prednisone so I was determined to get off. My PMR has not returned. I had almost no pain on 10mg prednisone. Then some pain I think from adrenal insufficiency while tapering to zero but I just held course. As Jeff said search the PMR section of Mayo clinic. years of good advice.