Diagnosed with Meningioma on 01/13/25

Posted by karinav4236 @karinav4236, Jan 19 7:00pm

Hi, I am 55 yrs old and was just diagnosed with Meningioma. I am scared. On 12/12/24 I was at work and felt very tired, had slurred speech and left side shifted down. All went back to normal within 15 min. I had a CT scan and then an MRI with and w/o contrast on 1/12/25. I have had no issues since 12/12/24. From time to time, I do feel like I am going to fall feeling but I don’t. It is a very strange feeling. I am going to see a neurosurgeon on 2/4 Afro the first time. I will be traveling to Europe on 2/11 for 10 days. Anyone have any suggestions? I get scared that I am going to have another seizure episode. Thanks

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What is the size of the tumor and where is it at? You might want to hold off on that trip for now. I had a 6cm meningioma late 2022 on the right side over my ear. My neurosurgeon advised that due to the size and it gave me stroke like symptoms but was a seizure that if it were him, he wouldn’t wait 2 weeks to get it out. That’s what we did, two weeks later I was in the hospital and back out in about 48 hours.

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During my 2 week waiting period I did have some fall concerns also. While I was standing in my kitchen and bent over a little bit when it appeared the entire floor tilted to the left. It was short lived but confusing and made me nauseous.

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@kris1970

What is the size of the tumor and where is it at? You might want to hold off on that trip for now. I had a 6cm meningioma late 2022 on the right side over my ear. My neurosurgeon advised that due to the size and it gave me stroke like symptoms but was a seizure that if it were him, he wouldn’t wait 2 weeks to get it out. That’s what we did, two weeks later I was in the hospital and back out in about 48 hours.

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Thanks for the information. Here is the details I was given:
there is a homogeneously enhancing mass, corresponding with
meningioma, in
the anterior medial aspect of the right middle cranial fossa is near the orbital apex measuring approximately 1.2 × 0.8 x 1 cm (TR by AP by CC), causing mild mass effect on the anterior temporal pole.

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@kris1970

During my 2 week waiting period I did have some fall concerns also. While I was standing in my kitchen and bent over a little bit when it appeared the entire floor tilted to the left. It was short lived but confusing and made me nauseous.

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That is very interesting. It is a very strange feeling. I don’t feel nauseous, just weird. I still can walk but have that feeling I am going to fall. Thanks.

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@kris1970

What is the size of the tumor and where is it at? You might want to hold off on that trip for now. I had a 6cm meningioma late 2022 on the right side over my ear. My neurosurgeon advised that due to the size and it gave me stroke like symptoms but was a seizure that if it were him, he wouldn’t wait 2 weeks to get it out. That’s what we did, two weeks later I was in the hospital and back out in about 48 hours.

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It is near the orbital apex and measures approximately 1.2 × 0.8 x 1 cm.

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@karinav4236

Thanks for the information. Here is the details I was given:
there is a homogeneously enhancing mass, corresponding with
meningioma, in
the anterior medial aspect of the right middle cranial fossa is near the orbital apex measuring approximately 1.2 × 0.8 x 1 cm (TR by AP by CC), causing mild mass effect on the anterior temporal pole.

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Like at least someone else mentioned, I wouldn’t wait to have it attended to, particularly if it’s causing occasional seizures. It will only continue to grow.

I say this from personal experience. My emergency room doctor and I didn’t recognize a seizure; I never had an MRI, and I almost died when an unsuspected benign meningioma hemorrhaged. My recovery from the life-saving surgery was uneventful and 8 years later, my most recent MRI confirmed no tumor regrowth.

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@karinav4236

Thanks for the information. Here is the details I was given:
there is a homogeneously enhancing mass, corresponding with
meningioma, in
the anterior medial aspect of the right middle cranial fossa is near the orbital apex measuring approximately 1.2 × 0.8 x 1 cm (TR by AP by CC), causing mild mass effect on the anterior temporal pole.

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The lexicon used in my MRI report was like trying to read a foreign language. The only word I was able to understand was "meningioma." I see it as the role of the neuro doc to translate. Still, am glad the law has changed and patients are entitled to see our reports independent of the doctor's giving the ok to having them released to us.

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It is a scary thing to find out about happening in your brain - no doubt! Mine was found in June and removed in October - 3cm. I was advised to reschedule an overseas trip as I had some very mild possible seizure symptoms. I’m glad I did. Ask your neurosurgeon for sure. Also I just didn’t want to be that far away if things got any worse.

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@karinav4236

Thanks for the information. Here is the details I was given:
there is a homogeneously enhancing mass, corresponding with
meningioma, in
the anterior medial aspect of the right middle cranial fossa is near the orbital apex measuring approximately 1.2 × 0.8 x 1 cm (TR by AP by CC), causing mild mass effect on the anterior temporal pole.

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Good luck and be careful

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@mono21

Good luck and be careful

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Thank you! I will.

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