After 23 years of symptoms and a 2006 lupus diagnosis, my PCP (not rheumatology!) did an ANA with relfec panel and my anti-centromere antibodies are sky high (limited scleroderma). I am now being followed annually by a rheumatologist who specializes in that, and they did a lot of testing of kidneys, lung and heart to assess my status.

I get systemically ill in the sun. Other than that it is hard to tell which of my pain and neuro issues are due to autoimmunity. I also had a likely paraneoplastic syndrome, an autoimmune reaction to breast cancer. There is "something oging on" but at this point I don't care about labels, since I don't want to take immune suppressants. I did Plaquenil for years but cannot take it anymore (eyes, and also I have a borderline QTc syndrome).

I did an elimination diet in 2006. Eliminated gluten, dairy, salmon, avocado, nuts (both kinds), chocolate, soy, citrus, canola oil. Have gone back on soy in a limited way. I react to pitted fruits in excess. I believe gluten and dairy were contributing to inflammation/paresthesias but some of the other ones were actual allergies.

Tai chi helps me a lot. At the start of class all my neuro sensations are triggered but by the end my body is calmed.