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Replies to "My doctor is starting me with every 4 weeks for my infusion. How long have you..."
Polymyalgia Rheumatica (PMR) | Last Active: 14 hours ago | Replies (31)
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My doctor is starting me with every 4 weeks for my infusion. How long have you been taking the infusions? Are you still taking prednisone?
Replies to "My doctor is starting me with every 4 weeks for my infusion. How long have you..."
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I started with Actemra injections at first. I got off prednisone temporarily a year later.
I had a flare of another autoimmune condition within weeks of stopping prednisone while still doing Actemra injections.. A different biological (Humira) was started to treat this other autoimmune condition along with 60 mg of prednisone. I was unable to taper off prednisone again while on Humira because PMR symptoms returned.
I was given a choice between Actemra or Humira but not both. It was my choice to restart Actemra. Eventually Actemra infusions were tried and all my autoimmune conditions have been well controlled. I have been off prednisone as long as I do a monthly Actemra infusion. No prednisone and no flares of anything for almost 4 years.