← Return to Feeling defeated

Discussion

Feeling defeated

Polymyalgia Rheumatica (PMR) | Last Active: 14 hours ago | Replies (31)

Comment receiving replies
@linda7

This is good to know about the Actemra biosimilar. I just injected my last dose of the Kevzara (can't afford $16,000 a year since I was kicked off the patient assistance program with the drug company). At my last MD visit he agreed that I should try going off the Kevzara and see what happens. It did take away my PMR symptoms, but they returned when I dropped below 5 mg prednisone. If symptoms come back he said he "might" be able to get me on Actemra. For anyone wondering what a drug will cost, and they are on Medicare Part D, go to "Medicare.gov", then "health and drug plans", then "find and compare". It wouldn't have helped me to go on a higher tier in my plan since no plan offered in my county will cover Kevzara.

Jump to this post


Replies to "This is good to know about the Actemra biosimilar. I just injected my last dose of..."

Be careful below 5 mg of prednisone. I had problems when I got below 5 mg. It felt like PMR was returning until a cortisol level was checked. Most of my problems with lower doses of prednisone were likely caused by adrenal insufficiency although part of it could have been PMR.