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Any other females here with bladder cancer in their 50s?

Bladder Cancer | Last Active: 3 hours ago | Replies (41)
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@jowilliams1

Good question! My understanding is that's the normal protocol at least for my situation. They like to see that the chemo (cisplatin and gem for me) will shrink the tumor. I believe that helps them confirm that the chemo has worked and would have hopefully reduced any other cancer floating around. They "thought" that it worked from looking at ct scans, but weren't positive. Once I had my surgery they were able to confirm that the chemo did have an effect on the cancer from the tissue they removed. Thank goodness!

I had one lymph node (out of 13) taken out during surgery that was positive but couldn't be seen on the ct scan. Unfortunately I'm not in the clear just yet.

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Replies to "Good question! My understanding is that's the normal protocol at least for my situation. They like..."
tanya | @hmmm | Jan 21 9:35am

Thank you for your answer. I have found out that my urologist has referred me to another urologist who is about 6 hours away from me. It is at a school. I never asked to be a test tube applicant, so i am so confused. All I know is this muscle invasive cancer has not left my bladder yet but it is basically a ticking time bomb as it is considered the most form of high-grade you can get and now I am put on a triage list. Why won't they just remove my bladder before it starts to spread? Or does it come down to money in the end? Do they get paid for every referral so this school can get patients that can help with research? The pathology report says I have, High-grade urothelial carcinoma with extensive necrosis and squamous differentiation. So yes a ticking time bomb that requires a radical cystectomy immediately before it spreads.

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