Hello Deb, I am 62 and was diagnossed with epilepsy at age 10. I have been on AED's (anti-epileptic drugs) for some 50 years plus. Epilepsy is a disease that evolves and manifests over time and you learn to adapt your treatment plan. I would recommend starting with any neurologist and having an EEG done asap. January 24th is great! Currently, my neurologist is out 3-4 months I would keep a log of the seizures and what was occuring at the onset (tv, computers, sleep deprivation, etc.) His GP is going to be concerned about a proper diagnosis and treatment plan without a neurologist diagnosing the type of seizures and EEG results.

I've been on a combination of 5-6 drugs and I'm sure your neurologist team would start with the standard of care (keppra, gabopentin, clobazn, etc.) and you adapt. Someone said above-events happen (stress, car accident, life (my wife had beaten ovarian cancer 4 times)) and the seizures change and you change your medication lineup. It takes patience and discipline. All the best with the Mayo Clinic or other team and hope for answers for your son.