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PMR and Work

Polymyalgia Rheumatica (PMR) | Last Active: 9 hours ago | Replies (13)

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@nyxygirl

O- M- G !!! hello @neztrop check out his conversation https://connect.mayoclinic.org/comment/870000/ -Ground Hog day indeed !!

To answer your question about work - I went on Family Medical Leave of Absence - we have that here in Massachusetts instead of short term disability. I never knew by what time of late morning I would feel OK , I could barely do any work from home because I was not up to it. And the thought of driving was way too scary.

However --for me and others increasing a suboptimal dose of about 20-15mg to 30 mg did the trick ( however my PCP would not prescribe higher dose - so do you already have a Rheumatologist) !! As I noted , my heat map of stiffness for three times during the day turned completely green at 30 mg not 20 mg! Did your highest dose ever rid you completely of pain and stiffness ? Like magic ?

And I totally agree with @megz about the split dose . And are you keeping a pain journal ? Check out PMRandIL6.com website for some great slides.

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Replies to "O- M- G !!! hello @neztrop check out his conversation https://connect.mayoclinic.org/comment/870000/ -Ground Hog day indeed !!..."

Thanks so much! The higher dose did clear the pain but my Rheumatologist is concerned about bad effects of prednisone. I see him tomorrow and am asking to slow the taper a bit. Thanks for your help.

Many Thanks! I do keep a pain journal of sorts.
I see my Dr tomorrow and am hopeful he will raise my dose back to 25 or 30, at least until I reduce my hours at work. We’ll see.
Thanks Again.