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How much hair should I expect to lose on Folfiri?

Colorectal Cancer | Last Active: Jan 22 6:02pm | Replies (16)

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@isadora2021

@myjiggers1 I did 6 months of Folfiri + Avastin. I knew going in I could lose a lot but unlikely to lose all. I did pick out some wigs and scarves in case but didn’t purchase them as I didn’t need them.

I shed hair heavily all over the house to start with then it also started coming out in clumps in my hands when I washed my hair very gently as little as possible (usually once a week).

I ended up losing about two thirds (I have a lot even though not thick).

Luckily the third I kept was evenly distributed around my head so I didn’t need to shave. People who didn’t know me just thought I had thin fine hair. I also wasn’t allowed to colour it other than with natural vegan colorants (which I chose not to use) so grey came through too. At least my hair didn’t grow so less grey than I thought!

I deliberately chose not to do cold cap during treatments to try and save my hair. My research showed it didn’t work for most and that it was very painful to tolerate in the chair.

The upsides were: I did keep my eyebrows and eyelashes. I didn’t need to shave my arm pits, legs or bikini line!!

My hair has grown back thicker and healthier than before - and unfortunately I am also back to shaving!

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Replies to "@myjiggers1 I did 6 months of Folfiri + Avastin. I knew going in I could lose..."

Shaving does suck lol 😂 Thank you for sharing with me your experience! I am shedding all over and its been little clumps all around the shower floor and my hand when washing gently. I am not blessed with lots or thick hair, so I am definitely stressing about it. A nice friend from church bought me some just in case caps in all colors so if I start to get uncomfortable I can wear them. My leg hair slowed down but has yet to disappear 🫠. Its gonna be a long haul. They aren’t giving me an end date this time. Ugh 😣 I will pray for shaving days!