Lumbar Pain Pump needed. Any Doctors for 65+?
The last of the baby-boomers are finding out that health ins. advantage plans with social security can’t get a doctor…It doesn’t pay! This my 3rd call to specialists related to my hospital can’t get pass the scheduling nurse as I listened again to a hot mic phone call where the nurse ask the phone desk operator “Is that his file on screen” Yes she said. “Oh No, his case doesn’t pay, tell him we are busy!” Then I hear those famous words “All 4 of our neurologist are busy with their patients! Sorry”. Well, knock me down with a feather. 20+ yr old Combat Vets returning from WW-II come home in 46-47, start a family 10 yrs later and children born in 57-58+ are reaching critical mass and Dr’s don’t like it. Workers comp pays better I have been told, so unless you’re ready to pay $3k-$5k out of pocket, you’re not get services. I have exhausted everything else, many fusions, RFA, Epidurals I lost count, S-I injections, SCS that after 3rd time the Dr. gave up. 20hrs of Ketamine IV drip is expensive & not fun also not fruitful. The Opioid debacle messed everything up, now buprenorphine/Subloxone is 2 per day while teeth crack off. Wow, having fun now! Forget the class action as you had to be on this stuff 2 years. Why? Some people sunburn & get freckles and others don’t. We are all different and had this since Jan 2024. Never had a cavity my life and now this? Sad world!
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Please keep me updated. I am wanting to learn every type of help that's available and where. I appreciate you letting me know this information.
The Pic is from Dr Tennants book.
I am still making calls, trying to get pass the nurse gate guards who protect the doctors from folks who’s insurance is paying low for services. Contractual right-off’s they call it. Instead of making $67,800 for 3 visits that include a pain pump install and permanent attachment of the catheter to the spot found best durning trial, then many note that it requires a third visit to actually put medication in the pumps reservoir before turning it on. This may vary between doctor or even regional best practices. My spinal cord stimulator really pissed me off after a 60-70% relief during the trial, Doc placed new leads (Electrodes) in new spot to get 100%. It backfired as it went down my legs into the heels. I told my GP. I told my 84 yr old surgeon that as 5,6 or 7 YouTube videos had a Dr or patient tell they story of bring the patient awake in OR to have the device manufacture Rep turn on the Bluetooth and produce some signals. At this point they would ask “Where do you feel stimulation?” This helps locate the right spot or wrong! Otherwise to me, it guessing! It is “Russian Rue-let”! Put one bullet in, spin the cylinder and pull the trigger! Let’s see what happens… This approach is stupid because it’s guessing. My Dr woke me on the 3rd & last OR visit, and proceeded letting me feel the pain of cutting, stitching and them talking. He did understand and asked me. I explained it to him yet he look at me like I had 3 heads!
A trial for a pain pump should use the location of the highest lumbar pain, info from the Dr who did 3 epidurals. Do they talk to each other or are they above consulting with a younger less experienced Dr who is not an equal. Why would I listen to a patient? They aren’t doctors, they are stupid. Just fingerprints with a wallet. The doctor runs off to his office to do what, watch a football game or check his investments portfolio as his $8,000 a week check clears the bank.
They would take a senior on Medicare as it pays just enough to cover cost, but not enough to make a Volvo payment and golf club greens fees! So, they sit and wait for a paying customer including workers comp as they pay more than insurance on Medicare. Meanwhile I am in pain every day, all night long and can’t function. Taking a shower and standing in my closet just to pick clothes is painful and exhausting! It’s like having a 100 pound backpack full of metal led!
I want a pleasant life. I want to do physical things. I would like to jog or run around my block(s)! Not grab a cane because I need to use the restroom. What if my doctor had this happen instantly one day and couldn’t stand over a patient in OR? Then what? Would one of their doctor buddy’s help fixed them up? Most likely. In the meantime my quality of life is 2, not 10!
Mine is not gratifying at all. I'm grateful for my life getting up but pain and anxiety is awful. I'm trying my best to stay positive but tonight temps dropping to 10. So yay me. Can already feel it in my bone. It's awful. I was up at 3 am and now hurting. Prayers. I will not allow any injections in my spine ever again. None. Nothing. It's bad enough not going to let them put me in a wheel chair.
I will tell you to check with a cardiologist as they can use a sonogram to check blood flow in your affected extremities. If oxygen carrying blood cells can not flow enough to remove toxins and supply tissue with oxygen, then you may have peripheral artery disease (PAD). If extreme or left un repaired this can lead to amputation. Sorry.
I am in search of a doctor to start a pain pump for lumbar issues and have done simple research. It starts with either neurosurgeon or anesthesiologist who is trained with this “Intrathecal pump”. They start by locating the best area above the pain and inject a small amount of medication into this area. They will have you stop current pain meds for two weeks, assign a company to perform a Physic Eval to call and you answer a list of questions before the trial. The pump can deliver several types of pain killers you Dr. feels is best. They range from Dilaudid, hydromorphone, ziconotide, morphine sulfate, fentanyl, clonidine, bupivacine or sufentanil. You are released to go home with a driver and see the Dr. several more times to check healing, leakage, redness & fever. You get a handheld device that allows you to give a programmed extra dose if pain returns. The catheter usually will be held with stitches so it can not move or migrate. Pump is placed in the front and has location features that allows for a sterile template placed over the device to indicate injection point. They are 20cc & 40cc and make a peeping noise in a pattern to communicate with the patient or doctor during refilling if battery requires service. Best of luck. I hope I can afford the co-pay someday.
I'm not a able to get a stimulator bc of my spinal tumor years ago and my spine has naturally fused together. So the Dr says I'm not able to be on list for 1.
I pray you have a better day. May God bless you.
Thanks for the kinds words. I truly hope you pain problems are properly diagnosed and fixed. My injury happened in the fall of 1986. This lead to herniated disc then fusion of S1-L5-L4 with bone. Decades ago, Drs acted differently as mine came into the room to explain and tell me the future. I had pulled 5 groups of muscle (Strain) but turned it into scar tissue. I would have been better off to fall off a ladder or car accident!
The Dr told me in years when arthritis sets in, pain will return! It sure did after 2 decades of work and somewhat pain free. My GP, started with meds, then sent me to epidurals (X3) and had relief but less than 2 days. Next thing was RFA (radio frequency ablation) that didn’t last past the check clearing the bank! Then I am sent to the RFA Dr told have a SCS (spinal cord stimulator). I had 60-70% relief as a conservative report. Then an implant came and went down my legs into feet! I asked if the battery was backwards as pain is up lumbar not down legs. This I when they get stupid! They have a meeting to dream up a story tell convince the insurance company to pay them again and move electrode leads. Now nothing on left and 2” away from spine on right side! My GP told me they couldn’t remove one lead (Electrode) other drs said no reason they couldn’t remove lead, it just comes out. So 20hrs IV drip of ketamine for what I don’t know, but still paying cash to a family member for this. I have no clue but would guess it’s illegal here but not in Colorado! Now sent to Dr who was shocked no one injected sacrum - iliac joints! It worked but only bottom 1/3rd of back pain. It was actually great as I was free of 1/3rd of my pain. Now a pain pump! Great… But everyone I call, I sent history and images and they pass. The only one that will do it even with insurance wants $1,100 up front! What the hell? I found out this is for their check for 45 minutes of work on out patient and they send a bill to insurance at $60k. Where does it stop after 14 years of pursuing back pain relief? Money???
Did you get the pain pump? Did it work?
I'm not a recipient for a pain pump. My spine was worked on from my T1 -T12 and now it's naturally fused so I don't have room due to removal of tumor years ago. 1985. And now I have waited 8 years to find out why I have these new worsening symptoms. I have broke me foot few years ago. 4 bones still have problems. Using a walker but I try not to be dependant but I use it to travel thru house I was just using a cane. I live in VA and this extremely cold weather causes it to hurt terribly. Idk what my electric bill is going to be but I dread to see it. I have a little dog that keeps me company but she loves me and hates going outside. She likes being warm. Like me.
Will talk more later. I'm having a flare up so I hot to get up and walk or move.