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Support For Those Quitting Prolia

Osteoporosis & Bone Health | Last Active: Jan 20 7:30pm | Replies (171)
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@formisc

Thank you for your kind words and encouragement, Mayblin. And thanks for the article link - it may be the answer to one of my questions, about why CTX remained low with the fracture, assuming the fracture is recent.

Initially, my plan was to do the next CTX at the end of 3 months just before i transition to tri-weekly Alendronate. But now, if i do decide to stop Alendronate completely, it prob would be safer to do the next CTX earlier - perhaps in early Mar instead.

I remember there was a paper that mention how much CTX goes up for each month of cessation of bisphonate use - need to see if i can find it again. That could affect when i time the next BTM test

The research paper you linked, like most others, was referring to vertebrae fractures caused by high CTX post-Prolia. It is an odd situation to be in - having to worry about CTX being too low during the relay stage!

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rjd | @rjd | Jan 20 9:28am

Finding and posting that paper about CTX level rising each month in relation to bisphonate cessation would be appreciated.

Sorry to learn about your recent CTX result falling back into the mystery zone. You already know the reason for my concern about low CTX numbers, having had dialogue on this issue previously, including the perspective of McCormick from his book. You may also recall I am interested in what produces strong bone and that this may or may not be connected to what we typically measure.... bone density.

Your information about a newly discovered fracture obviously raises some concern. Did you have pain or any other symptoms that caused you to seek a spinal xray? Even though many such fractures apparently result without acute trauma, can you recall anything that might account for the fracture.? What is your level of physical activity?

Your situation now appears very similar to @awesomemomx2 and hope she will chime in here. As I recall she consulted with McCormick about low CTX numbers and her desire to stop Prolia. She also had a couple of spinal fractures and McCormick asked for follow-up that would hopefully shed light on whether the fractures occurred while on Prolia or pre-Prolia. I think her next scheduled Prolia injection could be this January. Hate to rely on my recollection but this forum is just too difficult/time-consuming to research/review prior postings.

Have you ruled out any other possible causes for a low CTX score?

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