Prescribed Tymlos after Evenity

Posted by hollygs @hollygs, Nov 17, 2024

I completed a one year course of Evenity in September 2023. I switched endocrinologists afterwards, and he prescribed Fosamax after a brief discussion. I contacted the doctor who had prescribed Evenity, and he advised that I come to the office. He prescribed Tymlos, which I have now been on for 8 months. I changed my medical insurance to Medicare, and the doctor who prescribed both Evenity and Tymlos doesn't take it. I went back to the doctor who prescribed Fosamax after Evenity and he freaked out and said Tymlos is NEVER given after Evenity. His colleague in the same office concurred. He then ordered Prolia. I contacted the manufacturers of both Evenity and Tymlos, and they were very considerate and informed me that to their knowledge, there have been no studies about using Tymlos after Evenity. I am currently on a wait list for a new endocrinologist. I have a history of vertebral fractures and I need dental work, and I don't want to be on Prolia. I can finish the remaining months of Tymlos, or switch to Fosamax and wait and see what the new endocrinologist recommends. Needless to say, the situation is not ideal as I'm winging it. That being said, I know that treatment for osteoporosis is complicated and we patients have to be our own advocates and do a lot of research. I'm not opposed to that, but I'm not finding any information for protocols that have a progression of Evenity to Tymlos and then? If anyone has any information to share, I'd really appreciate it.

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@hollygs

@pami Thank you so much for the kind words. My next Dexa will be in March, and I'll come back here to report my results. I sure hope you have amazing gains from Evenity, and best of luck with whatever you and your doctor decide. To answer your question, I don't feel like a lab animal as I feel that I have agency to actively participate in my care. I've learned a lot, and as you can see on this site, there's a lot of very helpful information. I've also chosen to remain positive and strong so that I can make good decisions moving forward. Best wishes to you.

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Thank you for your optimistic attitude! I am grateful that there are now more options for osteoporosis care. I look forward to seeing your results! I will have a bone scan in February. I will need to start a new drug in March.

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@pami

Thank you for your optimistic attitude! I am grateful that there are now more options for osteoporosis care. I look forward to seeing your results! I will have a bone scan in February. I will need to start a new drug in March.

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@pami I'm grateful that there are more options too! That being said, it can be daunting to navigate through the seemingly murky waters when it comes to treatment options. I'd like to suggest that you post your questions in a separate thread as you're much more likely to get answers. "Has anyone gone from Prolia to Evenity to Forteo?", etc. Best wishes to you moving forward!

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