← Return to PNETs: What comes first? Surgery or try to shrink tumor with chemo?

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@hopeful33250

@lar23
Here is a link to another listing of NET specialists, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

A second opinion is often allowed by insurance companies. It would be worthwhile to attempt to get another opinion from a NET specialist.

Will you post again?

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Replies to "@lar23 Here is a link to another listing of NET specialists, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/. A second opinion is..."

Thank you! Yes we have our first non specialist appt this week and a specialist appt mid Feb. Crossing fingers, big prayers.

We just met up with the oncologist. Actually the same Dr. that had treated a family member for melanoma. We received more info but also have more questions. Seeing Net specialist next month.
It is Pnets stage 4 of the liver. He is not recommending surgery. It is stage 3 with KI 67 25% so a little above the slow growing one. He said don't have the liver therapy with the beads at their facility yet, that would be at the specialists. He is recommending the Chemo tablets, forgot the name. My husband is nervous about the side effects of taking the drug. We also would like to know if the drug is working can you reduce the amount or stay on it forever?
We will see what the specialists say. I feel horrible for my husband. He is such an active type. It is nonfunctional nets. I don't know how we ca n't be anxious with worry daily????

Yes I did post.