Adrenocortical carcinoma (ACC) outcomes: What to expect?

Posted by annern @annern, Jan 12 10:22am

I (F 67) was diagnosed with adrenal cortical carcinoma stage 2, Non secreting tumor in September 2024. Treatment of surgical removal, 25 days of radiation and now Chemotherapy with Mitotane (Lysodrin). I am looking for people with this diagnosis to compare side effects. I’m also on Hydrocortisone replacement. If anyone is further down the road than I am, please let me know how you are doing!

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Colleen Young, Connect Director | @colleenyoung | 9 hours ago

@annern, welcome. I'm tagging a few other members like @1kjewels @tomelledge @liz65liz65 @freitag who have experience with adrenocortical carcinoma (ACC). You may also be interested in this related discussion:

– Adrenal Cancer: Anyone else have this? https://connect.mayoclinic.org/discussion/adrenal-cancer/

Anne, like you've been on a whirlwind of treatment (surgery, radiation and chemo) since September last year. It sounds like you've only now had a chance to catch your breath and wish to connect with others.

How is your recovery from surgery and radiation going? How often will you receive chemotherapy? How are you doing emotionally?

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