← Return to Leiomyosarcoma: What can I expect now?
DiscussionLeiomyosarcoma: What can I expect now?
Sarcoma | Last Active: Feb 14 10:21am | Replies (81)Comment receiving replies
Replies to "I was 65 when I had my first surgery. I have stage 4 of vea cava..."
Hello, I was diagnosed in November 2024 of LMS in the peritoneal and had surgery in December. I was told that no chemo or radiation is needed at this time, and will need imaging every 3-months. Can you please share more of your journey?
Hi, my cousin was diagnosed with Leiomyosarcoma of the inferior ivc Dec 24.2024. Chemo began on Christmas Day. She rcvd chemotherapy for 1 day and was told she is highly allergic to Heparin. We were then told she now has HIT. They've given her 2 different types of blood thinners that didn't work. As of Sunday she was put on a 3rd type of blood thinner. They've called a meeting with us and said the mass has gotten bigger. It now has reached her liver. She's on continuous dialysis due how the HIT messed with her kidneys. They pretty much told us there nothing else they can do and asked our preference on DNR, etc .
I however believe in miracles. Once this new medication gets into her system and the body gets rid of the clots, she can get a liver transplant while they remove the tumor ( which is located beside the liver). She can remain on dialysis for life if needed. She's to young for ending life. She's an outstanding officer of the law 20+ years service and has a animal rescue with over 50 animals. Jesus fix this💕