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Prednisone cumulative dose in PMR
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (20)Comment receiving replies
I'm currently 70 years old. PMR was diagnosed when I was 52. I took Prednisone for PMR every day for 13 years until I was 65 years old. At 65, a biologic called Actemra was tried and I tapered off prednisone in a year. I have now been completely off prednisone for 3 years.
PMR was not my first autoimmune diagnoses. My first diagnosis happened at the ripe age of 32 years old. That was when I got my first taste of prednisone. I still remember the bitter taste it left in my mouth. For my first autoimmune disorders, 60-100 mg of prednisone followed by a fast taper was routine for me until PMR was diagnosed. After PMR was diagnosed, I was on moderately high doses of prednisone daily until I was switched to the biologic.
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Dadcue, what a long history of needing Prednisone you have had .
Do you have any long term prednisone side effects?
The more recent advent of Actemera has clearly been a game changer for you and many others who have reported so on this forum.
Did you have any short or long term side effects from actemera ?
How long did you need to be on actemera ?
Im on Actemra weekly since time of diagnosis beginning Nov 2024 :
GCA ( large vessel involvement, no cranial or eyesight involvement & PMR )
In addition to Actemra I’m on a rapid 4mth pred reduction from 50mg .
Currently on 4mg .
So far i’m going really well.
I’m in a remission already demonstrated by both symptoms (complete lack of ) & low inflammation markers.
( from a CRP of 137!! )
I’m grateful to have Actema available at the time of my diagnosis, and feel hopeful it will reduce the need for greater prednisone cumulative dosages and subsequent long term side effects.
Wishing the least possible anti inflammatory medications for everyone here as we do a risk benefit’s analysis for treating our serious autoimmune diseases.