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Feeling defeated

Polymyalgia Rheumatica (PMR) | Last Active: 13 hours ago | Replies (31)

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@nyxygirl

@ropnrose woo hoo ! I'm curious if you could share how that conversation went with your Rheumatologist ( also- why not on Kevzara?) A relapse after 6 months sounds like the type of candidate for a biological . And @nothatkaren Remember - you are on steroids - so you may not yourself among your staff , etc !! Don't text them at 5 am _ HA HA - ask me how I know not to do that : )

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Replies to "@ropnrose woo hoo ! I'm curious if you could share how that conversation went with your..."

@nyxgirl--A couple of months ago, when my rheumy and I had a conversation about biologics and methatrexate, she suggested Kevzara. I'm on Medicare and my Part D would not cover it with out me jumping through a bunch of hoops. If they did approve, I would have high co-pays. I wasn't crazy about biologics due to the side effects (pick your poison), so we dropped the conversation, because I was managing my PMR pain. Fast forward to December, I had a flare up. Along with the flare up, my headaches were similar to the ones I had when I had suspected GCA during the summer. I contacted her and told her that I wanted to try Actemra, which is approved for GCA and also used for PMR. She was on board and all I had to do was find a local infusion center and she submitted the order. With Actemra, I can go to an infusion center and my Medicare plans will pay for the infusions, after I meet my annual deductible. Actemra can also be prescribed for self administered injections at home. Doing that, I would have been in the same situation with my prescription plan and co-pays.