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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

ksdm | @ksdm | 7 hours ago

I've been having a muscle spasm in one spot on my back on and off for 20 years. Sometimes it lasts 2 weeks and sometimes it lasts for 6 weeks. This time it is lasting, so far, 7 months. I have tried literally everything from pain pills to spasm pills, PT, acupuncture, and botox and I still wake up with it. I have to sit in a chair with the heating pad on my back or I will be in such pain that I can't do anything! I have been to pain clinics and nothing has stopped the spasm. I obviously have no life.

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ksdm | @ksdm | 7 hours ago
In reply to @lesliehawkinson "I have advanced degenerative osteoarthritis. I am in constant pain and I am very allergic to..." + (show)
@lesliehawkinson

I have advanced degenerative osteoarthritis. I am in constant pain and I am very allergic to pain medications. I. do not take any ever, even when I have had surgeries. I am active as I can be, have a puppy who keeps me busy and maintain my home. Sleeping ar night is very poor as I am often awake every hour or so. I don't know if there is anything I can do. I am 87 years old and in good health otherwise. I keep going but it is hard to ignore the pain and weakness I feel night and day.

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Have you tried 8-hour Tylenol for pain? It doesn't cause stomach upset, and you can even take it on an empty stomach. Maybe you should take an over-the-counter sleeping pill at night? I have some success with these two, and I can't take prescription pain meds.

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1 reply
miaiam | @miaiam | 5 hours ago
In reply to @1kay2 "I totally understand your journey. I too, am alone with my arthritis, torn rotator and fibromyalgia...." + (show)
@1kay2

I totally understand your journey. I too, am alone with my arthritis, torn rotator and fibromyalgia. I am happy to get a visitor occasionally but really find it takes a lot of energy. I am worried because i may need knee surgery and then I can't be alone. I have 2 flights of stairs and am not sure about a stair lift or selling my place. So bless you so I do sincerely hope it gets somewhat better for you to handle.

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Thank you for the kind response. I know I'm not alone in struggle. There is a world of suffering. The biggest challenge for me is how to stay engaged in life when I have so many physical limitations. Being alone increases sadness about loss of partner.
I practice mindfulness meditation and that gets me through the darkest moments but I want more than survival. I’d like to experience joy again. Does this resonate with anyone?

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lesliehawkinson | @lesliehawkinson | 5 hours ago
In reply to @ksdm "Have you tried 8-hour Tylenol for pain? It doesn't cause stomach upset, and you can even..." + (show)
@ksdm

Have you tried 8-hour Tylenol for pain? It doesn't cause stomach upset, and you can even take it on an empty stomach. Maybe you should take an over-the-counter sleeping pill at night? I have some success with these two, and I can't take prescription pain meds.

Jump to this post

Yes I have tried all of that over the years. I do not take pain meds for all the surgeries I have had. Tylenol is like a sugar cube. These do nothing for me. I am leaning to live with the pain. My mother had it and I have it. I am active and healthy in every other way, but sleep is hard and I live with the pain.
Thanks for all your help and ideas.

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marcia | @marciak9 | 4 hours ago
In reply to @heisenberg34 "How did you manage to get a doc to prescribe it. My pain docs seems totally..." + (show)
@heisenberg34

How did you manage to get a doc to prescribe it. My pain docs seems totally ignorant in regards to prescribing anything else except what I'm already on: tramadol, gabapentin, and baclofen. These barely touch my pain. Did you just go in to the office and say, "Hey, Doc. I heard that this drug called suboxen might help with my pain, Would you write a script for me, please?".

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I have a palliative dr whose only concern is my comfort. If I want to try something he usually is game.

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1 reply
heisenberg34 | @heisenberg34 | 3 hours ago
In reply to @marciak9 "I have a palliative dr whose only concern is my comfort. If I want to try..." + (show)
@marciak9

I have a palliative dr whose only concern is my comfort. If I want to try something he usually is game.

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Thanks. Wish I could find such a doc here in Delaware. I have been under the impression that opioids are like a poison that the government has pretty much been banned (as seen on “Dopesick”).

I even have trouble getting a script for Tramadol. It barely touches my pain.
Anyway, good to talk with you.

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