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Synovial sarcoma metastasized to lungs: Looking for connection
Sarcoma | Last Active: Sep 26 3:58pm | Replies (28)Comment receiving replies
Do you go to a facility that knows a lot about synovial sarcoma? I’ve gone to Mayo for synovial sarcoma for 38 years with more lung metastases than I can remember. Different options for removal I’ve had are surgery, radio frequency ablation, cryoblation, stereotactic radiation, brachytherapy, radiation and chemotherapy. You might ask about some of these other options.
Replies to "Do you go to a facility that knows a lot about synovial sarcoma? I’ve gone to..."
So I live in Canada and my options are limited to goverment spending. I asked about my options and basically was only given the option of an oral medication Pazopanib. When I asked about any type of ablation I was told that if we go in, there could be multiple tumors that we just can't see on the scans. so its not an option. After having such an awful time with the chemo and not a great outcome, im reluctant to start up on this medication and all the comes with it.
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Thank you for your comment. I have asked about these procedures and it has given me more hope that I can live longer than they think