← Return to I am one year out with my diagnosis just finished 4th round of PRRT

Discussion
Comment receiving replies
@nevinrbaskin

I have Grade 1 stage 4 stage NET. The primary tumor was resected which was in the small intestines. I also have a tumor in the mesentery area which is pressing on the mesentery vein and artery, multiple lesions in the liver, subclavian lymph node and a small spot on my acetabulum. The Doatate PET scan with copper which Dr Wolin ordered at MT Sinai was much clearer than the one I got locally with gallium.
My last PRRT was 1/3 and I have a Doatate PET scan with copper scheduled in April and will have a follow up visit 4/28 with Dr Wolin. I am praying the PRRT shrunk all the tumors.

Jump to this post


Replies to "I have Grade 1 stage 4 stage NET. The primary tumor was resected which was in..."

We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a consult for PRRT today and I'm terrified. I have non functional tumors with no symptoms. I did Octreotide for 1 year with terrible diarrhea so I stopped it. I have just a few new tiny tumors is my liver and I'm hoping I can put off PRRT for a year with scans every 6 months to watch for change.