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DiscussionI am one year out with my diagnosis just finished 4th round of PRRT
Neuroendocrine Tumors (NETs) | Last Active: Jan 22 10:13am | Replies (24)Comment receiving replies
Replies to "I have Grade 1 stage 4 stage NET. The primary tumor was resected which was in..."
We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a consult for PRRT today and I'm terrified. I have non functional tumors with no symptoms. I did Octreotide for 1 year with terrible diarrhea so I stopped it. I have just a few new tiny tumors is my liver and I'm hoping I can put off PRRT for a year with scans every 6 months to watch for change.