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Primary Biliary Cholangitis: I would like to connect with others
Autoimmune Diseases | Last Active: Feb 5 7:44pm | Replies (56)Comment receiving replies
@john80, @irisjolie I want to extend a Welcome to Connect to both of you. I also want to introduce the two of you since you are both diagnosed with PBC.
I'm a transplant recipient. I did not have PBC, but I had (PSC) and did take URSO pre transplant and I did have many of the side effects that we can expect as patients with liver disease.
- John, I saw that you are already experiencing those 'yucky' symptoms that liver disease patients have to cope with. And that you are taking URSO. So, would you like to share a bit about yourself? How long ago were you diagnosed? How are you being monitored by doctor? Repeat labs?
- Iris, When were you diagnosed with PBC? Are you experiencing any symptoms? When were you diagnosed?
While we wait for other members to respond, What questions or concerns would you like to ask on Connect?
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I was diagnosed with PBC/Cirrhosis in 2021 at age 69. I had high liver enzymes and low kidney function for several years before my PCP sent me to a GI doctor. She ran extensive liver labs and said my bilirubin was high and I needed a biopsy. It came back with the DX and I had never drank alcohol!
Many doctors have not heard of PBC so make sure you find a good hepatologist. I’m on Ursodiol, eat a healthy Mediterranean Diet, exercise and drink water. So far I have been asymptomatic except for one GI bleed, which put me in the hospital 3 days. My labs are not normal, but I feel pretty good!
Best wishes 💚