Is anybody dealing with an angiosarcoma?

Hello @bigkevh20,

You asked about angiosarcoma specialists at the Mayo Clinic. Here is a link to the Mayo Clinic's website that will provide information about their specialists in this area,
--Angiosarcoma, Doctors, Departments
https://www.mayoclinic.org/diseases-conditions/angiosarcoma/doctors-departments/ddc-20350249
If you are interested in obtaining a consultation, here is a link with information about how to go about getting an appointment for a consultation,
http://mayocl.in/1mtmR63
I look forward to hearing from you again.

@claryssa, there are a couple of other discussions specific to angiosarcoma of the breast that might interest you here:
- Just diagnosed with sarcoma in my breast
https://connect.mayoclinic.org/discussion/just-diagnose-with-sacorma-in-my-breast-what-can-i-use-or-be-used/
- Angiosarcoma of the breast caused by previous breast radiation
https://connect.mayoclinic.org/discussion/angiosarcoma-of-the-breast-caused-by-previous-breast-radiation/
Claryssa, what treatment option was decided upon?

I am currently working on getting a second opinion. I just met with the radiation doctor who seemed to give me more insight than my oncologist. The options are mastectomy and/or radiation. My lump was small, over 1 cm. Before making a decision, I want to gather as much information as possible. I'm currently working on finding a doctor who has some experience with angiosarcomas that are not radiation induced.

First of all my heart goes out to you. My husband was diagnosed 10 years ago at 52 with Angiosarcoma in the liver. Went through long grueling treatment but was fortunate we found a doctor that thought outside the box. Tumor was right in the middle of liver and no way to remove it and still have the 20% to live. So they tricked his liver into growing so they could remove it. There were some complications along the way. Pleural effusion in lung that they ended up gluing his lung to rib cage to keep it from filling with fluid. We later found out he was exposed to ionizing radiation in the service which could be a cause for it. He just recently was diagnosed with prostate cancer. But all in all is doing as good as can be expected. Just curious if anyone has had a reoccurrence of the Angiosarcoma years later in a different spot since it is a cancer of the lining of the blood vessels, it could be lurking anywhere. Any new tests/markers out there to possibly prevent it from returning or catching it early enough. We realize he was extremely lucky they found it when they did and was totally by accident since he had no symptoms.

First of all my heart goes out to you. My husband was diagnosed 10 years ago at 52 with Angiosarcoma in the liver. Went through long grueling treatment but was fortunate we found a doctor that thought outside the box. Tumor was right in the middle of liver and no way to remove it and still have the 20% to live. So they tricked his liver into growing so they could remove it. There were some complications along the way. Pleural effusion in lung that they ended up gluing his lung to rib cage to keep it from filling with fluid. We later found out he was exposed to ionizing radiation in the service which could be a cause for it. He just recently was diagnosed with prostate cancer. But all in all is doing as good as can be expected. Just curious if anyone has had a reoccurrence of the Angiosarcoma years later in a different spot since it is a cancer of the lining of the blood vessels, it could be lurking anywhere. Any new tests/markers out there to possibly prevent it from returning or catching it early enough. We realize he was extremely lucky they found it when they did and was totally by accident since he had no symptoms.

A belated welcome, @droth05. I really appreciate hearing your and your husband's journey with angiosarcoma of the liver. I'm sure @claryssa @bigkevh20 and others here are too.

I'm sorry to hear about your husband's recent diagnosis with prostate cancer now. You may wish to join the informative and supportive discussions here:
- Prostate Cancer support group https://connect.mayoclinic.org/group/prostate-cancer/

You also ask about angiosarcoma recurrence. Is the prostate cancer a new primary cancer? Is his team also suspecting a recurrence of angiosarcoma? What follow-up schedule and testing does he have?

Your Dr. can set you up with Natera blood draws every so often which can track cancer cell levels in the blood to show remission and/or return/increase in cancer cells to catch its return early. I just finished my second round of chemo for stage 4 bladder cancer which is angiosarcoma. I head back to MD Anderson the 21st to get new scans to see if the chemo is working. Natera is coming next week for 3rd blood draw. They can come to your house to be convenient. Hope that your husband remains in remission!