Hi,
Just fyi, I was able to wean off Pred within 8 months of my initial hospitalization and I’ve had no relapses (knock on wood). I do try to exercise (I got an Apple Watch and try to close my rings every day) and eat right although the pred left me with a stubborn 5 lbs extra that I can’t seem to shake. I also have a crazy sweet tooth now - always craving desserts. So I really feel for you Robert. When I came off the pred I had A LOT of joint pain for a couple of months. I thought it was permanent but doing very gentle yoga helped a lot and finally it went away. I am currently only on Ruxience - I get an infusion every 6 months. Age 58, female, San Diego. I’m happy to help anyone going through this scary disease. My only remaining symptoms are very slight thankfully. I’m grateful every day to be here.