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I am one year out with my diagnosis just finished 4th round of PRRT

Neuroendocrine Tumors (NETs) | Last Active: Jan 22 10:13am | Replies (24)
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@ericnjeffrey

I am sorry you have had such a hard year. I have a question. After your resection did you have any mestastitis? Or was the resection for just the one tumor? What grade was your tumor? The reason I am asking is your symtpoms sound like you had carcinoid/functional NET tumor. And your symptoms continued after the tumor was removed?

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Replies to "I am sorry you have had such a hard year. I have a question. After your..."
ericnjeffrey | @ericnjeffrey | Jan 19 5:06pm

I didn’t have symptoms until I had a colonoscopy in November. I had bloating and felt full easily. I lost 12 pounds. 5 weeks after the colonoscopy I had a colon resection. I only had one tumor. Grade 1. No mets. The bloating is better. My appetite is better. I haven’t had any additional weight loss.

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