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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 1 day ago | Replies (332)

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@donnyboy

Robert, I am similarly with Clippers, have been hospitalized twice, prednisone on and off, now on 20 mg daily and stabile. Likely to begin soon to transition from the prednisone to infusions of rituximab. I have found exercises of many types to be most beneficial in getting me back to a state closer to normality. What are your Clippers symptoms? Do you engage in other forms of exercise? Don

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Replies to "Robert, I am similarly with Clippers, have been hospitalized twice, prednisone on and off, now on..."

Hello. my first symptoms involved double vision. I thought it was complications with diabetes. But it wasn't. Then things progressed to difficulty with balance and walking. I started slurring speech after that. This went along for about 3 months. I went to the ER after month 2 and reported that I was perhaps having a stroke. But an MRI revealed that I had no stroke. It was not until I had an MRI with contrast that the diagnosis was made. After hospitalization I returned to almost normal. But then I relapsed after 5 months. I did not know what to expect during a relapse. I expected my vision to double again but it did not. It remained normal. Instead I had trouble with walking and balance. Physical Therapy has helped alot. I do stretching and minor weight training to keep me from losing strength. Prednisone is not good for bone density. I am hoping my neurologist will reduce my dosage. Today I'm at 40mg in the morning only.