1. < Digestive Health

I was diagnosed with EPI and struggle with the limited diet choices

Posted by pennie225 @pennie225, Sep 5, 2023

After being diagnosed with severe EPI I was told to follow a diet that has no meat , no fish , no dairy and nothing fried. Other members in my household eat what they want and mealtimes are depressing.

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penelope52 | @penelope52 | Nov 14, 2023
In reply to @vickin "Are you taking enzymes? I was diagnosed a year and half ago. With no input from..." + (show)
@vickin

Are you taking enzymes?
I was diagnosed a year and half ago. With no input from my dr, I have learned what I can tolerate. I rake Creon enzymes and it took over a year for my body ro settle down and for me to learn what foods work for me. Everyone I’ve communicated with is able to tolerate different foods.
There is a Facebook group for EPI and I’ve learned so much from their experiences. I’d recommend you ask your dr about enzyme replacement. It has made a huge improvement in my life.

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Agree with all you have written. It has taken about a year for me to figure out what I can and cannot tolerate; it differs from person to person. While I can tolerate peanut butter (my salvation for calories so I don't lose more weight), peanuts cause my Pancreas to hurt. I am pre-diabetic, so also fighting that progressing to full blown diabetes, and following low carb. It is difficult to keep weight up while on a low carb diet. All carbs definitely are not the same and while I can tolerate 20 grams steel cut oats glucose wise, a slice of Dave's killer bread or Ezekiel, which only contain 15 grams per slice, shoots my glucose up very quickly. This is all very time consuming and requires intense study to balance, but I have CREON and it could always be worse. Ddelighted I found this group. Any other dietary suggestions would be greatly appreciated.

REPLY
mads05 | @mads05 | 1 day ago
In reply to @vickin "Are you taking enzymes? I was diagnosed a year and half ago. With no input from..." + (show)
@vickin

Are you taking enzymes?
I was diagnosed a year and half ago. With no input from my dr, I have learned what I can tolerate. I rake Creon enzymes and it took over a year for my body ro settle down and for me to learn what foods work for me. Everyone I’ve communicated with is able to tolerate different foods.
There is a Facebook group for EPI and I’ve learned so much from their experiences. I’d recommend you ask your dr about enzyme replacement. It has made a huge improvement in my life.

Jump to this post

Hi, I’ve also been diagnosed with EPI and am starting my medication finally! Am not on Facebook but could do with some advice can you join Facebook privately for just this page? Thanks

REPLY
1 reply
vickin | @vickin | 1 day ago
In reply to @mads05 "Hi, I’ve also been diagnosed with EPI and am starting my medication finally! Am not on..." + (show)
@mads05

Hi, I’ve also been diagnosed with EPI and am starting my medication finally! Am not on Facebook but could do with some advice can you join Facebook privately for just this page? Thanks

Jump to this post

Yes you can. The group is Living with EPI. You have t ask/apply to join. It is open to all who have EPI or a caretaker. It is a great, understanding group. My GI gave me no info and this helped me tremendously.
Good luck!

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miar22 | @miar22 | 3 hours ago

I totally understand that. I too have diagnosed with severe EPI but given no diet options. Trying to figure it out from online info. I basically eat no dairy, no meat, no yeast. It’s been pretty difficult to stop losing weight. I hope you’re doing better at keeping weight on.

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