Do people always have drains after mastectomy? If so, for how long?

Posted by staceycholmes99 @staceycholmes99, Dec 30, 2024

Hi, I'm having a unilateral mastectomy next week. Do people always have drains? if so for how long and are they uncomfortable?

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@staceycholmes99

Thank you! I just did my preop and they explained the drains. I'm struggling with whether to have a bilateral mastectomy or a unilateral one. I have stage 3 ILC cancer in my left breast, and am very pron to cysts. should I post this in a different chat?

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I was diagnosed with ILC in 7/23. I had a lumpectomy in 8/23. I wanted a dbl masectomy from the beginning but was having resistance from numerous people because it was caught early. I agreed because I wanted the C out of my body fast. The more I learned about ILC being the sneaky cancer, my family history and the fact that I have dense fibrous breasts led me to seek out a surgeon to remove both. This happened 6 months later. I'm so happy with my decision. My mother had a lumpectomy in 2007, one breast removed in 2010 and the other in 2014. I have less to worry about now. My pathology report showed numerous pre cancers and ILC insitu in the same breast as the lumpectomy. I'm followed up with yearly masectomies. I had a skinsparing goldilocks masectomy which left me with tiny breasts so I'm not concave. In most cases you can have implants. My heart is with you. It's not an easy decision.

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Yes I had the drains for three weeks

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I had TNBC in my right breast stage 2, dense breast tissue, and TNBC has been known to sneak back in so I decided to go with the bilateral. My drains were in for 2 weeks, I had the skin sparing mastectomy and expanders placed in June 2024, then the final implants in November 2024. My breast and plastic surgeons were just incredible to the point where I was in to see the plastic and the breast surgeon called him and they spoke with me in the room.

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@maryk206

Hi @staceycholmes99 - I had a unilateral mastectomy last May. I only had one drain - pretty easy to deal with. (@susan7656 - I can imagine 2 on each side was really no fun!!) I healed quickly and they were able to take the drain out after only one week, which I understand is pretty fast.

What I found fortunate about having a unilateral mastectomy (vs. bilateral) was that I had full use of my other arm/hand at all times. The healing process was pretty chill. My big advice is to not over do it. At one point a couple of weeks in, I was putting a lid on a tupperware container and managed to somehow strain my mastectomy side. So dumb!

Just follow doctor's orders and you'll be fine. The drains are kind of weird and a little gross (I mean, who wants tubes hanging out of your body?) but they aren't painful. I used a mastectomy drain holder belt thing from Amazon as well and just wore a very soft, oversized button up flannel shirt with nothing else on top for a couple of weeks. The flannel was cozy and soft on my skin and wearing a button-up with easy access was helpful. With my dominant hand on my non-mastectomy side, I was able to empty the drain myself.

Something else - be prepared to have various skin sensations over time as you heal. I never had any actual pain, but because they end up damaging the nerves during surgery, I've had numbness (still do, after all these months), skin that is super sensitive to different fabrics, and at one point a spot on my side felt like sandpaper on a sunburn - that was probably the worst (but it only lasted less than a couple of weeks and then went away).

Be brave - you've got this! Give yourself time to heal. It'll be over with soon.

Cheers,
Mary

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I had my bilateral mastectomy on 12/12/24. Had 2 of my drains removed at week 3 and the other 2 at week 4. I concur with comments here. More of an annoyance, than anything. No pain, per say. But, Mary, your comment regarding sandpaper on sunburn I can totally relate to. Started about week 3 and at week 5, still going. Cover my entire chest and under arms. I know it's from the nerve damage (neuropathy). I've asked for something to treat from both breast surgeon and oncologist and both said "it will go away over time." No meds offered. Praying it goes away soon, because it is miserable.
Best of luck to all going thru BC. Terri

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@terricull

I had my bilateral mastectomy on 12/12/24. Had 2 of my drains removed at week 3 and the other 2 at week 4. I concur with comments here. More of an annoyance, than anything. No pain, per say. But, Mary, your comment regarding sandpaper on sunburn I can totally relate to. Started about week 3 and at week 5, still going. Cover my entire chest and under arms. I know it's from the nerve damage (neuropathy). I've asked for something to treat from both breast surgeon and oncologist and both said "it will go away over time." No meds offered. Praying it goes away soon, because it is miserable.
Best of luck to all going thru BC. Terri

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YES! the "sandpaper-on-sunburn" feeling is the WORST! I also got it in a weird spot - mostly on my side/back rather than near my mastectomy scar/chest. The horrible feeling did go way . . can't remember how long it took, but felt really concerning at the time. I hadn't seen a description of that sensation anywhere in books or articles, but saw some online posts from patients with the description "sandpaper-on-sunburn" and it totally described it! That spot where I had it still hasn't gone fully back to normal. It's been 8 months and I only wear a very, very, very buttery soft bra (bralette?) with no seams (fortunately I'm very small chested so my remaining breast doesn't need a super supportive bra - just something to cover it up) and am still dying to take it off at the end of the day because my nerves on that side still feel wonky . . . not painful, just uncomfortable. Just a new reality. HANG IN THERE!!!!

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One on each side. As I was told, always done when you have surgery on the upper half of your body. Move as little as possible, as the movement creates fluid. The more fluid, the longer the drain stays in.

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I had 5 surgeries within 6 months. Drains for 4 of them, for about 2 weeks every time. I had to empty them 3 times a day and measure each time. When drainage got down to less 20 cc, they could come out.

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@katgob

One on each side. As I was told, always done when you have surgery on the upper half of your body. Move as little as possible, as the movement creates fluid. The more fluid, the longer the drain stays in.

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I had 2 on each side. Ugh!

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