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Cancer risks of Tymlos

Osteoporosis & Bone Health | Last Active: 13 hours ago | Replies (83)

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@windyshores

@lylii and @ mary1951

With a -4.1 DEXA an real risk/benefit discussion needs to happen, and preferably between an endocrinologist and an oncologist, and the dentist too. Dental issues pose problems for Prolia and bisphosphonates and to a lesser degree, the full year of Evenity. Prior readiation may or may not pose problems for Tymlos or Forteo.

This is a true rock and a hard place situation. A bisphosphonate will be needed at some point so the dental issues will need to be addressed regardless.

It seems the most self-advocacy needed is in the issue of radiation to nose and cheek and whether that constitutes radiation on bone. Was it a skin cancer? Physicians don't seem to talk to one another. In this case it is needed!

I hope the endo is able to fully absorb the situation and avoid following a general guideline (no Tymlos after radiation) for an individual situation that needs deeper evaluation- especially out of fear of liability. Some endos in my experience can be quite flexible. What is the possible harm from Tymlos after such limited radiation? Who can answer that?

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Replies to "@lylii and @ mary1951 With a -4.1 DEXA an real risk/benefit discussion needs to happen, and..."

@windyshores, it seems we always need to do research and advocate for ourselves. Since the endocrinologist did not seem interested in contacting the radiologist who prescribed my radiation, I am going to try to contact him myself with the question. The endocrinologist did spend a lot of time with me, and in the end said I should personally choose between the two, since there were risks to both.

I forgot to mention to him that I also have aortic atherosclerosis, which can cause heart issues and blood clots, so again, I feel that Tymlos is the safer bet.

My third choice, he said, was to do nothing but not bother to get any more Dexa scans, since it was only a matter of time before I'd have another fracture.

I really didn't appreciate that, even though it might be true. I was a very active 73 year old before this last fracture, so I managed to live a fairly normal life before this one. I unfortunately did a great deal of heavy duty yard work after Hurricane Milton, to clear the debris out of my yard, and I think that is what caused the fracture.

However, this fracture was serious enough that I never want to have another one!
Thanks so much for your advice.