← Return to Thyroid cancer and Hashimotos: Full or partial thyroid thyroidectomy?

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Profile picture for lmmhqb @lmmhqb

I met with my endocrinologist on Wednesday, she was very a tune to my concerns with the Hashimoto’s, we went over everything and all of the available data and it pretty much came down to I could argue that a partial or total removal were best. So I kind ofhad to choose. So I spoke to my surgeon and let him know that I want him to go into the surgery with the priority be in my left lobe, but if that went well to go ahead and take the rest of it. He was in agreement. Thursday I had a total thyroidectomy, went very well, there was a moment where they almost severed one of the nerves on my right side, but he caught it and did didn’t damage it thank goodness. But people with Hashimoto’s do have thyroids that are usually inflamed, and can be hard to get out, my doctor described Hashimotos thyroids can be “sticky.” so it’s a bit of an additional challenge for surgeons, so it’s good to get an experienced surgeon.

The ultimate reason why I decided to go total is because that allows for more ways to monitor for recurrence in the future. If you get a partial you can really only monitor via ultrasound, but with a total they can use thyroglobulin levels, ultrasound, CT with contrast and also I could get Radio iodine if pathology comes back and they think I should do that. I also wanted to avoid a second surgery. Meeting with the endocrinologist was key, though, I would not have had my surgery until I was able to do that, so I would advise anyone that is about to have their surgery. Make sure you meet with your endocrinologist beforehand.

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@lmmhqb
Same situation for me. Although I did not know that I had Hashimoto's until I read the pathology report. Of course it made a lot of sense after the fact.
Since 2023 I have had one radioactive iodine treatment for residual tissue.
In 2024 and this week I had two trips to UCSF for another RI treatment because my thyroid globulin antibody continue to stay ~ 25.
Both times I went through the diet, and the stress of thinking cancer had returned only to find both times on the scans that there was no cancer or residual tissue.
I did a deep dive yesterday and even with a thyroidectomy we can still have thyroiditis if we previously had Hashimoto's. This inflammation can affect your thyroid globulin anti antibody test. At least that's what I found doing my research. I'm meeting with my endocrinologist in the next couple weeks to see what he thinks.