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Prolia discontinuation

Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (101)

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@windyshores

@laujodrik I have been told that Tymlos and Forteo are not very effective after Prolia. If you have jaw necrosis I can see that Reclast would not be a good option but I wonder if you could do at least some Evenity. Does your doctor suggest Tymlos or Forteo?

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Replies to "@laujodrik I have been told that Tymlos and Forteo are not very effective after Prolia. If..."

Evenity is in the same class as Prolia, Reclast and many others. I have no choice. The Prolia wasn’t doing great for me. I had a ct and they needed to use steroids because I’m allergic to iodine. The dr should gave known this could be a side effect. I’m very frightened that I can’t take anything.

I did experience ONJ while on Prolia, after an implant procedure. The implants were removed in I am in the process of healing. I have been on Prolia for 7 years and I'm desperately trying to get off. Because of my jaw issues, I only can switch HRT as an alternative, which is not as strong or as effective in combating rebound effect. My only other choice is to stay on Prolia indefinitely. Plus, I can't prove it, but I believe that I have other side effects from taking prolia, including high blood pressure and high cholesterol. And now I'm on high blood pressure meds because they just discovered a blockage in my left ventricle, which most likely be caused from high blood pressure or sleep apnea (I also have the latter and haven't used my CPAP in years). I'm in a pretty bad position... I am only 70 years old and I thought I would live a longer, but these multiple problems all stemming from Prolia use in my opinion don't seem to end. I also have possibly hyperparathyroidism, which might endocrinologist is in the process of checking. I just started going to her and am in the process of getting blood work to figure out if I have enough markers to have my parathyroid removed. Currently there is only one criteria that's being met so they can't get to the bottom of my problem, I'll be at square one again.