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Looking for people who have high levels of B6 trigger neuropathy.
Two years ago I experienced a number of different symptoms that I thought were disconnected…nausea, heartburn, walking off balance, burning/ pinprick pain in feet, numbness. Found they were, in fact, symptoms of B6 toxicity. Requested bloodwork to test my theory, despite doctors skepticism. Level was at 72! ( norm near 10) I changed supplement so B6 was only 4 mg. Tried to cut down foods high in B6 , but found it difficult, as they were most easily digestible. After 6 months, B6 gradually came down, meds helped with digestive issues, lost 30 lbs. Unfortunately, the neuropathy has remained. I recently found myself with more wobbly gait, some sensitivity to light, just feeling off. Bloodtest showed B6 creeping back up, now 32. Has anyone found a reason for why B6 absorption may be problematic, if supplementation is not a cause?
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Thanks for the information. Happy to hear you found a medical professional to bring you healing. That is the challenge , even being a reasonable distance from Boston.
What does Sanexas do?
I am not sure who I am replying to here. I am just interjecting with my confusion about B6. I stopped taking my multivitamin about 6 weeks ago to see if it would improve my high B12 levels (1,400-2,450-ish for the last ten years). After 6 weeks off the multi (which I only took for a few of those 10 years), I had blood tests that included B12 and B6. My B12 was down to 1,187. I ordered a chelated ferritin supplement to see if that helps with B12 absorption. My B6 was 113.3. The optimal range the lab stated is 3.5 to 65.2. Even though I have severe multi-neuropathies, my doctor said my B6 was still within a normal range. All my research about B6, including links people have listed here, only speaks to how much B6 a person should ingest daily in the diet (and the advice on that differs significantly). I can't find legitimate information about the blood serum level that can cause or exacerbate neuropathy. Any help would be appreciated. I will ask this same question in an SFN Facebook group and a B6 Facebook support group.
https://www.rstsanexas.com/neogen/
click on neuropathy video on them website-very informative...
If you really believe your Medical support is incompetent you should find another source for help
Not incompetent..but thinking and acting only inside the box....when I see a doctor, I'm telling him or her what to do.....as a result, most of them kick me out....in Europe we have a say....."a patient is half a doctor"!
This is true. Most only had to take one course on nutrition. Research doesn’t get funded for topics related to vitamins, like B6 and neuropathy, with big pharma not making enough money. From docs point of view, no research means word of patients not enough to truly investigate.
For me, it was a list of seemingly disconnected symptoms that led me to discover they were all related to B6 high levels. My doctor reluctantly honored my requested for a blood test. My level was 72. Decreasing my B6 supplement, ( 50mg- thinking goal of 100mg daily)) resulted in getting a reading under 10 after 7 months. Though other symptoms improved, neuropathy has remained. Recently could feel some symptoms returning. Blood test showed it creeping back up. So now….Taking supplements without B6 and about to consciously tweak diet as to lower intake that way. I’ve learned much this site and am now aware upping hydration and exercise are necessary if I want to see improvement. Easy step to try that is good to do in general.