Hello, I am sorry to hear that the abiraterone was problematic for you! This is why I started this post.
You mention Nubeqa (Darolutamide). My concern is that it increases the risk of having a seizure, and my father had a minor seizure a few years back. He is on meds for this. Perhaps this is why the Sloan dr did not recommend it. We will check with him on this.
With regard to less abiraterone coupled with a special diet, this is definitely something to look into!
I will bring up your radiation suggestions at the Sloan appt on Tuesday. The first opinion was IMRT just to the prostate - not the lymphnodes or bone mets which surprised me.
RE: 2nd opinion: Sloan is our second opinion. I am assuming Sloan is a "center of excellence".
Yes, we are working with a Genitourinary oncologist at Sloan. He is certainly up on the latest research....since dad is in stage 4, I wouldn't have it any other way.
Things to consider
Zytiga can also cause seizures.
Zytiga wasn’t just problematic for me, I have heard from many people that have experienced problems with their blood pressure when taking Zytiga.
The most common problem with Zytiga is fatigue. With some people it is really bad. It can be reduced by taking 10mg of prednisone rather than 5mg. Some doctors prescribe 10mg and others 5mg at the beginning , both are considered standard of care.