caregiver2. Thank you for posting. Dang the gvhd. Briefly last week the dr said he may put me back on tacro. Those Drs and nurse in the transplant unit strive to cure. We show them our side effects will keep them on their toes.

I am 284 days post-transplant and Oct 2, 2023, was my diagnosis day. I almost forget i am a transplant patient most days. Last week the CMV in my blood, that fabulous thing that can cause herpes, shingles and those things showed.218. Nothing has been detected in 9 months. My liver enzymes were up too. Yesterday i had a one week follow up. They put me back on ursodiol 3 times a day to protect my liver. My nurse asked if I have ever had pain in my gallbladder. I said scans have shone a few stones, but no pain. Things looked a bit better, so hopefully the ursodiol will help. as to the CMV, there is another pill beside acyclovir. Valcyte. The CMV blood test takes at least an extra day. My nurse said do not worry as these changes have solutions. My next visit is in 2 weeks, if the CMV remains detectable she will check with the Dr. to change the pill.
I told her i was in a zoom meeting for breastcancer.org and suddenly realized i was thinking about cancer returning and all that. Since I arrived her in connect it is amazing to see how time has passed and i have 6 plus months of walking daily and water, water and more water. OOPS! My creatinine was up to .95. I knew it. I must drink 80 plus. I was having a cup of tea or another coffee this week and i realized it replaced water. Not intentionally, but it did.