Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for 1loveyoutoo @1loveyoutoo

Hi I’m Leiah. I have had Chronic Pain, shock pain, and tingling in my body since I had a late miscarriage out of state at 28 years old, and didn’t know I needed a Rhogam shot….I got suuuper ill, and had to use a cane, I’ve been fighting like crazy to try to train my mind to think of good things, especially in the morning, just be present, and to take care of myself gently! I do not use the cane anymore, even though sometimes maybe I should… I basically meditate as much as possible even when I’m standing. I try to go to a place in my mind that is not busy, and stay there. I was able to carry to full term finally yay after being diagnosed with Hashimoto’s Thyroiditis I was started on levothyroxine, my now 1st grader is autistic, who is also ODD, so my life is literally stress, and dodging bullets. I fought (and his Doctor) through all of Kindergarten to get him an IEP, to no avail. They called me so much an hour after drop off, that I am now homeschooling. A lot of people have failed me in my life, a lot of trauma, I was an SSRI’s guinea pig from 18-38 with every new med w/suicidal thoughts symptoms, and a lot of heartache, and even mandatory stays. I will get through the stress, and I will never stop fighting, praying, giving myself grace through the crazy life I live! 🙂 I know I’ve got this!

Jump to this post

Hello! You've had and have ongoing stress in your life, but you are ultimately, not daunted! I love it when you say: [ I will get through the stress, and I will never stop fighting, praying, giving myself grace through the crazy life I live! 🙂 I know I’ve got this!]
Yes! If you say "I've got this!" then you have, no matter what gets thrown at you. But be realistic also. Your life seems tumultuous -- maybe it would help if you organised all the things in your daily life to an exactitude, so that you'll be more ready, stronger, when life -- as it does! -- throws you a curve ball. You should be proud because you've been through so much and you've learned from so much of it. Almost constant, agonizing pain gets me very down sometimes, and I get generally pissed off at my poor quality of life, but it only takes someone's smile, the beauty of a tree in Spring, .....just a little thing, to make me glad and grateful that I am alive.

REPLY
Profile picture for lesliehawkinson @lesliehawkinson

I have advanced degenerative osteoarthritis. I am in constant pain and I am very allergic to pain medications. I. do not take any ever, even when I have had surgeries. I am active as I can be, have a puppy who keeps me busy and maintain my home. Sleeping ar night is very poor as I am often awake every hour or so. I don't know if there is anything I can do. I am 87 years old and in good health otherwise. I keep going but it is hard to ignore the pain and weakness I feel night and day.

Jump to this post

Lesliehawkinson, I forgot to mention some things which you might not have thought about. In case you haven't, here are some suggestions : never, ever have sugar in your house--or in your diet! Sugar will bring on inflammation, and inflammation is pain. This means being drastic, looking at food labels to see if there's any sugar/glucides etc. in it, and researching and making a list (you can google foods to avoid like the plague for osteoarthritis "sufferers" -- such as those from the nightshade family, like potatoes, tomatoes etc....). There are also herbs which help against pain, like turmeric (I have turmeric gummies, and you can put turmeric (curcumin) on nearly everything.
I was a right pig at Christmas and ate 6 profiteroles (I love chocloate) and wham ! I was completely flattened in bed for two weeks. Then magically, the flare up ended and I had no pain at all ! I don't understand it ! The "no pain" lasted about 3 days and then came back....it's painful for me at the moment (end stage arthritis of shoulders) to even type so I must stop now, have something to eat to protect my stomach and take an anti-inflammatory , relax, meditate, and sleep. It helps to have a thick, soft mattress topper to sleep on.

REPLY
Profile picture for lesliehawkinson @lesliehawkinson

I have advanced degenerative osteoarthritis. I am in constant pain and I am very allergic to pain medications. I. do not take any ever, even when I have had surgeries. I am active as I can be, have a puppy who keeps me busy and maintain my home. Sleeping ar night is very poor as I am often awake every hour or so. I don't know if there is anything I can do. I am 87 years old and in good health otherwise. I keep going but it is hard to ignore the pain and weakness I feel night and day.

Jump to this post

I feel much compassion for you. I too have pain always because of the arthritis, fibromyalgia and torn rotator. I take only 4 tylenol 3 a day and 100mg of antibiotic once a day. Cold rainy days pain is extreme all over. warmer days I have to stay in but can walk in the house. I need temperature outside to be around 20 C.

REPLY

Hello. My user handle is Benny Jean. I have fibromyalgia pain that flares in my ankles and sometimes my right wrist plus complex regional pain disorder in my right leg and arthritis issues in my spine. I have received steroids injections which help, have undergone Chiropractic treatment, practice Yoga, swim anything I think will help.

REPLY

I have inoperable degenerative spinal arthritis, scoliosis and hip labral tears. All the non- surgical options have been ineffective. Years of physical therapy improve strength but pain persists. Walking and lifting anything over 15 pounds cause increased pain. I live alone since my husband died suddenly and unexpectedly 9 months ago. Hope is a beautiful thing but now, especially living alone for the first time in 40+ years, it is getting harder and harder to find. I am generally a positive and hopeful person but I find myself stuck and discouraged. I know I am not alone in my journey. Grateful to have found this resource.

REPLY

Hi,
I'm Nadine and have had chronic pain for so many years now. I have Fibromyalgia, 21 surgeries so far for so many things not related to that, but makes it much harder to deal with because of the pain I solved before and after healing. I have Connective Tissue disease as well. Mixed at that. I have had many mild Ischemic Strokes with so many issues. I believe I have Primary progressive Aphasia because of the symptoms I'm having. They are getting worse. I see a specialist in John Hopkins as I'm not close to a Mayo Clinic. They did do my testing from my lumbar puncture and had positive on MS , but not the bands. I have dead areas in my brain as well as lesions where they believe vessel hemorrhage had been too. I've had so many MRI's and an a brain wave study and so so many blood test. Does anyone have PPA on here? My husband helps me and he drives me everywhere because my balance is terrible. My talking and thinking is worse and I am scared when I can't write anymore or read. I love reading and I only spend time with my few close friends playing cards now. It helps, my Neurologist says anyway. My strokes have nothing to do with PPA really, but it's another issue to deal with. I believe as he does that my Connective Tissue disease is causing those.. small vessel problems. My BP is lower. Today it's 108/50. I'm not over weight and no diabetes. No blockages that they can find on my MRI or Echogram of my heart. I'm 66 now and this all has been happing for about 3 years now. Worse in the last 8 months though.

REPLY

I know this may sound crazy but I’ve been able to manage my pain very well for over a year now. I’ve been taking the same dose of Suboxen and after being on methedoneand OxyContin only to have them work for short periods of time I was at the end of my rope. I couldn’t believe it when the Suboxen worked. It worked for me maybe it will work for you.

REPLY

Hi my names Jill and I’ve suffered from fibromyalgia for the better part of 30 yrs. And spent most of them being treated by narcotics. I had enough of them and decided to come off them cause I read somewhere that the narcotics can actually cause the pain to get worse. It was only by accident that I read that Suboxen the drug they use to detox you from narcotics also can be used to treat pain. I started taking the Suboxen about 2 yrs. Ago and have found that not only was I able to come of those narcotics my pain level on most days is at a very comfortable 9. It worked for me I hope it might help someone else.

REPLY
Profile picture for jillzizzo29 @jillzizzo29

Hi my names Jill and I’ve suffered from fibromyalgia for the better part of 30 yrs. And spent most of them being treated by narcotics. I had enough of them and decided to come off them cause I read somewhere that the narcotics can actually cause the pain to get worse. It was only by accident that I read that Suboxen the drug they use to detox you from narcotics also can be used to treat pain. I started taking the Suboxen about 2 yrs. Ago and have found that not only was I able to come of those narcotics my pain level on most days is at a very comfortable 9. It worked for me I hope it might help someone else.

Jump to this post

How did you manage to get a doc to prescribe it. My pain docs seems totally ignorant in regards to prescribing anything else except what I'm already on: tramadol, gabapentin, and baclofen. These barely touch my pain. Did you just go in to the office and say, "Hey, Doc. I heard that this drug called suboxen might help with my pain, Would you write a script for me, please?".

REPLY

There are a couple of ways talk to your dr. And show him my post the Suboxen works and it’s far better than taking narcotics. You can see a pain management dr. And if all else fails you can see a psychiatrist. Good luck in my book it’s a true life saver.

REPLY
Please sign in or register to post a reply.