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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 6 hours ago | Replies (597)Comment receiving replies
My husband is at post-transplant day +148. He is still having to have magnesium and hydration twice a week. He is being slowly transitioned from tacrolimus to Jakafi and weaned off the steroids. Hopefully, being off the tacrolimus will restore his kidney function and magnesium levels and the Jakafi will control the GVHD without bringing his blood counts down too much.
It is hard to believe that 313 days have passed since his diagnosis. 2024 was a blurr.
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Hi @caregiverx2 Welcome to the new year! I hope this one is much less eventful for you and your husband! My drama year was 2019 and you’re right, it just goes by in a blur. So much came flying at us starting in January! Phew!
Tacro can decrease blood flow through the kidneys. I was on Tacrolimus for 2.5 years, though at a much lower trough level, for a gvhd issue. It started impacting my kidney function but after I was finally able to stop the med, the numbers improved significantly. So fingers crossed this will be the change for the better in your husband as well. Sorry to hear he’s still having the magnesium infusions. That takes time out of the day, doesn’t it! Can you do the magnesium bulb at home or does he need to go in to an infusion center?
How is his gvhd? Is he still dealing with the rash?