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Feeling defeated

Polymyalgia Rheumatica (PMR) | Last Active: 9 hours ago | Replies (12)

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@ropnrose

I'm sorry that you were diagnosed with PMR. I can't add anything to what others have suggested. Manage your stress in things you have control over--i.e. an elected office.

I was diagnosed with PMR and possible GCA in July 2024. Started with 60 mg. prednisone, due to the GCA. Finally, after a month or so at 60, I started tapering. I was feeling pretty good, not back to my old self, but better than the previous summer months. Got down to 8 mg the beginning of December and had a flare up. After reading posts on this site about people who have been on prednisone for years, I made my mind up that I didn't want prednisone to dictate my life (although it has been a lifesaver, in some regards). It turned me into a diabetic and the blood sugar spikes are just as bad as the PMR pain. I told my rheumatologist that I wanted her to order Actemra infusions for me. Other's on this site seem to have had good success in reducing/eliminating prednisone, while taking the infusions. I will get my first infusion this Wednesday.

Good luck to you. This is a good community to voice your concerns and questions.

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Replies to "I'm sorry that you were diagnosed with PMR. I can't add anything to what others have..."

Good for you ropnrose. I did not need to take biologics to reduce my steroid use, but I have seen where it can take up to 8 weeks to start working. Dont give up. good luck.