I've been caring for my Mom for 4 years. THe neurologist was only helpful for the diagnosis. The tried memantine to slow down memory loss but too many side-effects. The neuro doesn't treat an untreatable disease, why go? Yet, I still took Mom until a few months ago when she started having seizures. They could do no more and suggested palliative care which she is now on. The entire 2 or 3 years of seeing neuro - seems like a waste. Every 6 months just to document she was getting worse. They give no help in dealing with it for family or patient. I'm frustrated and don't see the point after initial visit.