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@mary1951 no I did not have radiation (one out of 5 radiologists would have recommended it, I was told).
I understand that at -4.1 you might feel you don't have much time to decide. Can you see the dental specialists necessary to get cleared for Evenity? Can you make it a year on Evenity without extraction?
You could also do 4-6 months of Evenity (talk to your doctor). The strongest bone building happens in the early months. I did 4 months after Tymlos then Reclast.
I don't know if such localized radiation (nose) is a problem. Was it skin cancer or bone? Did your endocrinologist look into it or just give a standardized answer based on radiation as a contraindication?
The Tymlos site says that you need to tell your doctor if you :
-have or have had cancer in your bones.
-have or have had radiation therapy involving your bones.
Would Tymlos still be useful for the rest of your body and would it pose any harm? I would make sure to see an endo who can explain all this and give you an answer that is individual and customized to your situation.
No matter what you do, you will probably need to do a bisphosphonate to lock in gains. Those are stronger anti-resorptives than Evenity.
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@windyshores , when you say one out of 5 radiologists would have recommended it, do you mean they would have recommended that you have radiation, or that they would have recommended Tymlos? Sorry to be thick.
I think I have decided that I firmly do not want to do Evenity after reading an article in Science Direct about an 80 year old woman who developed narcosis of the jaw after using Evenity. The article was very graphic and very scary.
While I realize that this is rare, Evenity has not been on the market that long, and so it's hard to know what the incidence rate will be in 10 years. In addition the warnings about the heart and clots was enough for me to discard Evenity.
So that leaves Tymlos. My endocrinologist felt that the radiation I had on my cheek and nose for skin cancer was a cause for concern, but so are fractures. So I guess I am going to try the TYmlos and hope for the best. The nose doesn't have a lot of bone, and I only had radiation on one cheek.
I hope I'm doing the right thing.
Thanks for taking the time to help me. I've been reading your comments and like the idea of starting at a low dose. As Someone who is very sensitive to medication that was a relief to know I could do that!