Pain from spinal cord stimulator anchor hardware
I had a lumbar spinal cord stimulator implanted about 6 months ago. It's working reasonably well to help manage my low back pain. My biggest complaint is the hardware that anchors the leads and keeps them from migrating. The anchors sit over my spinal column and resulted in a raised scar. This is painful at times, especially when sitting in chairs with no back padding. They seem to have also changed the curvature of my spine somewhat, which negatively impacts my posture.
There are some surgical options to reposition the anchors or replace the leads with paddles, which don't require anchors. But both surgical options are pretty involved and would require another lengthy recovery.
I didn't even know this was a potential negative outcome risk until I did some research and found this impacts about 5% of SCS implant patients. In my case it's apparently more of an issue because I'm thin (BMI = 20.8). Is anyone else struggling with anchor pain from their SCS implant?
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I am not sure if I'm talking about the same thing but I had a pain stimulator put in my spine I don't think it's attached to the spine by archers it just floats above the spine It doesn't bother me but the battery that its attaches to it is in my side underneath my skin and that is what bothers me, very, uncomfortable it stings sometimes and gets in the way of the waistband of my clothes. It lasted five years then had a new one put in that is supposed to last seven to ten years and it can be updated to new technology with a computer and I get it adjusted to my pain level in the office I have a remote to put it in the area I hurt the most.
Mine does too. I have a painful lump on my spine from the anchor. My leads have already migrated also. There is a FDA website that shows only the reported problems. Most of the problems are anchor issues. I found studies that state percutaneous lead migration is as high as 40%! No one told me that. I'm trying to find an arachnoiditis knowledgeable Dr in the Central Fl area, to possibly do the paddle type. It's proving impossible.
I had same problems with stinging burning at battery site. After replacing 1st and putting 2nd in dr decided to check me for metals allergy . I'm one of the "lucky" ones with a contact allergy to Titanium and im allergic to gallium which is in batteries. Had to have battery removed. Dr left implant and leads in and now the leads are migrating. The pain....malaria. it's horrid.
@randijones571 Welcome to Connect, and thank you for sharing your experience. I don't have a spinal cord stimulator, but I have had issues with metals. I had my plates removed from my ankle after the fracture healed.
Cervical fusion at 3-4, 4-5 that has gone bad. Surgeon refuses amit any wrong. So, I have been suffering with pain for close to a year now. Taking 200mg Lyrica 3xs daily. Works a little bit. Pain management is trying nerve blocks. Had one done at #6. Don't know why they did it there?
@randijones571 I just had a Boston Scientific stimulator put in Tuesday. Did you have a lot of itching I think I might be allergic to the tape maybe the staples maybe I need to get tested
Probably just tape. I was in severe pain 24/7 at battery site. Give it time!!
I'm Carolyn. I have a proclaim xr stimulator implanted in my spine. It was recalled and I was never notified. It migrated and I now have severe scoliosis. I went to hospital few days ago with excruciating abdominal, leg pain and headache. I have gastrinitis and they said it's not from the stimulator, but I've read different stories. I'm scared and don't know what to do. Taking it out, there's a big chance of paralysis. I can't seem to find a Dr. That will be totally honest
Have the leads removed. I am to have the SCS removed next month, along with the paddles, same type of transfer system with pain control of a SCS.
I am pleased, as the paddles give off an "ache" a constant burning pain at the mid-spine. When performing in sports or cooking with much time on my feet, the pain is serious, and I need to rest or have my husband massage the pain, which helps some.
How far are you from Mayo? You need to direct your concern and have it removed. How old are you? Are you physically active? Where is the doctor that implanted it?