I am so happy to have discovered this group. I wondered for years since my transplant where all of the mental health support was for people who have recovered from having a transplant. I had a heart transplant in 2017 and a pancreas transplant in 2020 which kept me hospitalized at Mayo for almost an entire year because of complications and infections. After that hospitalization, I was unable to walk, eat, or even move my body. I needed care 24/7. This has put a major burden on my family members and lately, I feel like a noose around their neck. I found out that my donor heart is now failing and my life expectancy is short because I am not eligible for another transplant. I have two daughters and the thought of leaving them behind is beyond painful. Yet I am very tired and sometimes wish to just give in to my illness. I have fought for so long. I am so sorry that there are others who have been through so much but it is a relief to have found a place where others can truly understand.
Sending love, Lynn