Connect
← Return to Cancer risks of Tymlos
Discussion
Comment receiving replies
@windyshores , you said you had breast cancer. Did you have any radiation? I was given a choice of Evenity or Tymlos, but I have had ongoing dental problems since I was a child, And have had two abscesses in a molar this past year so Evenity petrifies me. However, I did have a course of 6 weeks of radiation on my nose for skin cancer, so the endocrinologist is leery about the Tymlos, while my PCP felt that it would be alright. So I'm at my wits end trying to figure out what to do. I have severe -4.1 Osteoporosis in the spine and have already had two compression fractures, and I agree with you that they are extremely painful and debilitating!
Replies to "@windyshores , you said you had breast cancer. Did you have any radiation? I was given..."
I would trust my endocrinologist's advice before I would trust advise on osteoporosis treatments from my PCP. Osteoporosis medications and treatment are complex problems, and endocrinologists are more up to date on the latest research. Just my opinion.
Connect
@mary1951 no I did not have radiation (one out of 5 radiologists would have recommended it, I was told).
I understand that at -4.1 you might feel you don't have much time to decide. Can you see the dental specialists necessary to get cleared for Evenity? Can you make it a year on Evenity without extraction?
You could also do 4-6 months of Evenity (talk to your doctor). The strongest bone building happens in the early months. I did 4 months after Tymlos then Reclast.
I don't know if such localized radiation (nose) is a problem. Was it skin cancer or bone? Did your endocrinologist look into it or just give a standardized answer based on radiation as a contraindication?
The Tymlos site says that you need to tell your doctor if you :
-have or have had cancer in your bones.
-have or have had radiation therapy involving your bones.
Would Tymlos still be useful for the rest of your body and would it pose any harm? I would make sure to see an endo who can explain all this and give you an answer that is individual and customized to your situation.
No matter what you do, you will probably need to do a bisphosphonate to lock in gains. Those are stronger anti-resorptives than Evenity.