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Idiopathic neuropathy and dizziness.
Neuropathy | Last Active: 6 hours ago | Replies (66)Comment receiving replies
I was in my later 20’s when I started noticing I was adversely affected by motion…I noticed driving got more difficult as there was too much movement between cars, guard rails, trees etc…I also noticed walking even caused the lightheaded, balance issues…it’s gradually gotten worse ( I’m 62 now). I never got an explanation of what was wrong. Then neuropathy started 8 yrs ago which just exacerbates it…unpleasant to deal with.
Similar to you it gets magnified in big stores etc….I think we fall into getting agoraphobia…which isn’t a surprise when you’re uncomfortable with your surroundings because your vestibular system is broken.
And that just throws gas on the fire. You’ve probably noticed pushing shopping carts provides some mental security. Best wishes to you .
Steve
Replies to "I was in my later 20’s when I started noticing I was adversely affected by motion…I..."
Hi Steve -
Wow - I feel like I could have written your letter myself, with a couple of differences in age. I was in my 50s when I started noticing the very same issues with driving that you describe. I thought it was part of the aging process. At about the very same time my PN started, but for about 20 years I didn't have a diagnosis. Your letter is the first instance where anyone has linked those driving situations with PN for me, and I send you many thanks. Twenty-five years ago it doesn't seem there was any light thrown on PN ~ likely because the tests that are used to diagnose it either hadn't been invented or were not widely available, or doctors weren't well instructed about it.
I'm definitely going to share this epiphany with my neurologist's N.P. when I have my next appointment ~ it is really interesting and should be really helpful information. Thank you!
Best to you,
Barb
Steve,
I could have written your letter as well. Shopping cart helps, walking into the big box store gets my dizziness and lightheadedness fired up. Foot neuropathy gotten worse. Almost don't want to drive anymore and I love my cars. I'm lightheaded at all times except when lying down. Getting up and walking makes it worse except for when I get on my treadmill and walk 2.5 miles while holding the hand rails. Walking on uneven ground is all but off limits for me now. I'll be 66 in a few days.
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Yes and thanks
I guess we just learn to deal with it ugh..
Best wishes ❤️