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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Brain Tumor | Last Active: Feb 8 4:56pm | Replies (535)
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@brchristian

Our daughter is working for an American company and living in Poland for a few years. She is 35 years old and has been diagnosed with an acoustic neuroma. She has found a doctor in Warsaw who appears to be THE one guy in all of Europe that you would want to do this surgery. His name is Dr. Kazimierz Niemczyk. He is highly recommended and passes the "online research" test. He has said that the neuroma is quite manageable and is recommending surgery, not radiation. He is saying that it is not necessary to go inside the skull to do the surgery. We feel quite comfortable with this doctor but just would like to have the peace of mind of a specialist at Mayo checking this doctor out and giving us their impression of him and his reputation. We are NOT looking for a second opinion at this stage. Is this a reasonable question to ask? Thank you!

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Colleen Young, Connect Director | @colleenyoung | Jan 17 2:51pm

@brchristian, if you would like an opinion from Mayo Clinic experts about the treatment recommended by your daughter's doctor in Poland, you can submit a request here: http://mayocl.in/1mtmR63 This is, by any other name, a second opinion. 🙂

I can imagine you are concerned about your daughter going through this so far away. Thank goodness there is an expert where she lives. When is she expected to have surgery?

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djewell823 | @djewell823 | Jan 26 10:55am

Hi, I’m not sure if you got an answer to your question about whether Mayo could give you a second opinion without it being in-person. I don’t know the answer to that, but I know that Dr Friedman at UC San Diego will do that.
I consulted with both places, by phone at UCSD and in person at Mayo. I chose Mayo, primarily because they could get me in sooner. UCSD has a very efficient process for sending records and doing a phone consult.

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