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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 18 hours ago | Replies (446)

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@archie2

Hi Lauren—Archie here—
Well, I just had my daily oatmeal so I guess not everything is in a bundle. I get what you say about anxiety- „oh just take it down a notch“ friends say. Well, easy to do is easy to say. In the context of MY experience, what you’re going through is very unusual—that doesn’t mean unlikely, just unusual. When medical practitioners say that AA is progressive, in general they are talking on terms of over YEARS, not days or months.
There is a „psychological overlay“ to everything we experience. It seems you’re being told (subtly if not explicitly) that you are overstating your symptoms because of your worry and anxiety. Take a breath. What you’re describing may reflect an entirely different diagnosis from AA. At this point, it seems you’re going to have to wait for the consults they have set up, and look at them as an opportunity to understand your pain process from a different perspective. If possible, get some sleep. This can help you deal with all the other variables. It’s hard to be more specific without knowing deeply about you. But we’re here, we know pain, we know the unfairness of having intractable pain and no help on the horizon. Don’t give up hope— you have appointments coming soon. Best, Archie

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Replies to "Hi Lauren—Archie here— Well, I just had my daily oatmeal so I guess not everything is..."

Hi Lauren. I have AA and have studied for 10 years. IMHO you will find no better advice than following Dr. Forrest Tennants recommendations as he has seen more cases than anyone and although I am in the catastrophic stage, I can still walk and my pain is controlled enough to take care of myself and enjoy many things in life. I have followed his recommendations after being his patient. He is retired. Everything you need to know and do can be found at http://www.arachnoiditishope.com. I hope this is allowed for me to share. Please start there and I'll be happy to answer your further questions. This is a horrendous disease but acute flares can be managed as well as chronic care. Sending my heartfelt blessings to you.