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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Feb 2 6:15pm | Replies (456)

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Profile picture for laurenseavertson @laurenseavertson

Archie lauren here Been having vert severe nerve pain, not relieved by Oxycodone or gabapentin I have been having Loss feeling in my feet & today woke up with very little feeling in my legs, feet. Very afraid this will get worse & i will lose my ability to walk & care for myself. Exercise, seems to help me feel my feet & my anxiety is rampant. Since i was paralyzed for 16 months, from MRSA in my spinal cord, not anxious to b e back in a wheelchair Have U experienced any thing like this? Pain was so severe yesterday & took more pain medicine Would Medrol dose pac help this? On gabapentin forever & can't tolerate Lyrica My neurologist booked & i don't have telehealth until feb 4th Couldn't sleep ( 2 hours) Every one says i need to curb my anxiety! Can u share your experience with this? Any one had similar severe nerve pain with numbness & loss of feeling? Is this a predictor or more to come? Seems to be intermittent & progressing Very hard not to get anxious. Pain was so bad, i thought i was going to pass out. Referral to Barrow's neurological coming. But, it's hard not to see this progression of symptoms. Any feedback or thoughts on this situation? Current neurologist says nothing can be done except steroids for AA Thanks

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