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Liver disease itching: What helps?
Transplants | Last Active: 12 hours ago | Replies (161)Comment receiving replies
Hi I’m brand new here. I ran across this in a search on medicines I’ve been prescribed ! RIFAXMIN AND URSIDIOL
I am not sure I need these yet . I had HCC - they ablated the liver where I had the growth and after 6 week checkup - I’m well and my meld is an 8 and my blood work looks real good. But because I sd I am a bit forgetful and sometimes I forget words they prescribed me this medication with lactulose- they want me to “go” 5 times a day ??? I had gastric sleeve 4 yrs ago . Ain’t no way I’m “going”five times . And they gave these antibiotics. I don’t think I need them yet. I am not swollen or anything my liver doesn’t hurt . I don’t want to take medication. That lactulose is GROSS! I may vomit 5 times taking it ! Anyway I am going to call them . I think I’m forgetful and just move to fast due to adhd and other mental disorders that make me a bit “ dingy” but not due to liver . I’ve seen people who were that sick . Idk but I’m going to talk again to my drs. What is the opinion here guys? Thank you for letting me join. Also I’m on the transplant list - because I have had the cancer HCC.
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@sherry01, Welcome to the conversation. I am a transplant recipient and I remember how confused I was during my pretransplant time when I was very ill, and found everything to be overwhelming and worrisome. I see that you are on the transplant list, is that correct?
You are absolutely correct to be taking your issues to the transplant team! When you talk to them, I encourage you to take someone with you because an extra set of ears and an extra voice will be most helpful so that you have someone to support you when you leave the doctor's office. Also I recommend that you make a list of your concerns...you could use the note that you wrote here an your reference. These are the things that the doctor needs to hear (from you) because our labs don't tell how we fwwl or what we are experiencing after we return home - our voices are the only way that they will know what's going on because we all react to medications differently. They will want to find ways to keep you as healthy as possible so that you can advance to the transplant.
Other members have discussed their experiences with lactulose. I want to share this support group with you. It is long, veers on and off topic, and includes some helpful ideas.
- Lactulose question
https://connect.mayoclinic.org/discussion/lactalose-question/
I did not have cancer, and I did not take lactulose, so no experience to share. But I did have liver failure and kidney failure that resulted in a double tranlant in 2009. And I know that we must continue to take medicines, even if we are feeling like we don't need them.
I hope that you will talk to the doctors real soon, especially with the way the lactulose is affecting you. I wonder of there is an alternative medication. Do you have an upcoming appointment? I look forward to hearing what you fine out.