@videvale, I see that you would like to message members like @ksnozal and @mijomi privately. You will be able to do so in a few days.

However, I'd also like to point out the benefit of sharing here in the support group where you receive support and information from several people and learn from each other. And other people with a similar diagnosis will join in.

As you mentioned in an earlier post, you found Mayo Clinic Connect because people shared on the forum about living with a GNET-Gastrointestinal Neuroectodermal Tumor. I hope you will continue to share your experiences here.

How is your wife doing? What treatment plan has been recommended for her?