← Return to Harmful to point out the gravity of my wife's memory problems?

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@windyshores

@pcetng0202 many people in my in-person support group had difficulties leaving their spouse or loved one. Our group leader warned us that we might be caregiving for many years and needed to also save ourselves. I ended up spending 8 years when I expected less. I was grateful for the advice.

Your local senior center, council on aging, elder services organization may be able to provide advice on how to have someone come to give you a chance to leave. I actually had a job years ago with a 93 year old woman, mainly to take her out to lunch. Some organizations provide volunteers (the "Village" movement here in MA). I continued tai chi and art class and I believe it saved my life. And an in-person support group with a leader who advised me for all those years.

Our local council on aging provides dementia training and a "dementia friends" program locally. Hospice volunteer programs also hold courses on how best to handle dementia. We also have "Memory cafe's where both caregiver and cared for person attend. I participated in that.

There are a lot of resources, including books! Art and music are also really helpful to the person with dementia. You could take classes together! Getting out of the house is a hard priority to have as a caregiver, but I was told often the stress and isolation mean the caregiver dies first.

My mother qualified for hospice based on dementia alone, which provided free aides 5 days a week , a volunteer to spell me, a social worker, nurse and chaplain. We used hospice for 3 years. You are not there yet, not at all, but I mention that as a resource that is underused due to the connotation of the word "hospice."

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Replies to "@pcetng0202 many people in my in-person support group had difficulties leaving their spouse or loved one...."

Do you mind saying how your mom qualified for hospice based on dementia? Trying to figure out if my dad might qualify.

Very wise words. I've already reacted by making a list of local in-person and virtual possibilities. Still grappling with the problem of alone time to pursue, given my wife's sense of guilt and anxiety, likelihood of feeling "abandoned." Doing what I can to take care of myself while expending most of my energies on helping her. As Scott mentioned in his follow-up, each case is special and no formula has guarantees. Thanks for mention hospice as a future recourse.