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Painful Neouropathy (idiopathic) in feet rising up legs

Neuropathy | Last Active: Jan 23 10:46am | Replies (18)

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@pghspinupgal

Wow! i’ve yet to hear of anyone having sane issues as me ! started numbness in toes then went up to my ankle, then started up my calf now it’s up past my knees. Doctor basically are just medically. Gaslighting me and brushing me off. They won’t give me any pain medicine. I’m on gabapentin as well., my my balance is so bad I won’t even go out in public without my husband or children i don’t kno what to do … feelin hopeless

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Replies to "Wow! i’ve yet to hear of anyone having sane issues as me ! started numbness in..."

I felt hopeless too after a quick-moving neuropathy that hit me after spinal fusion surgery for stenosis in my spine. MRI's showed later that the spinal nerves were fine, but I had (that was determined by two neurologists) was an autoimmune reaction to either the surgery or a number of other variables. I could not stand or walk at all, this after an active life. One of the first things I did was to see a family therapist so that my husband and I could cope with these changes. She helped me keep my focus on the day and not imagine only a dark future. Low dose antidepressants helped restore some depleted serotonin, after being on such an emotional roller-coaster.
My family have been great, and I eventually found a concerned and involved neurologist and physical therapist. My strength and endurance in my legs has improved, and further nerve inflammation and pain have been halted with IVIG infusions monthly for the last three years.
We bought various equipment and were covered by insurance for a power wheelchair. I use it for long distances but can use a rolling walker around the house and for short walks. This progress has taken more time than I wanted, but I will continue to move as much as I can and work with my PT.
After one of my stays in a physical rehab, friends made me a gift of a decorative board with one word on it--"HOPE." It's a word I offer you now. I'm glad you're here, and so is your family.