Hi! I have been taking it for over 25 years. I first got put on it at Mayo in Arizona. Then I took 1mg 3xday. Now I take. 5mg 2xaday. I felt alot better on the 1mg 3xday. But since my doctor retired all the new ones want to lower it. When the 1st doctor took me off of it I was at my granddaughters house in Kansas. Somehow I managed to unhook my feeding tube and I went downstairs to take my medication. I left it in my bathroom because I didn't want my great grandson to be able to get into it. But I have no memory of what happened after I took my medication. I woke up and I was hooked back up to my feeding tube and pump. So I thought maybe I had a bad dream. My granddaughter came in my room to wake me up since we were going to a festival. She says grandma what did you do. I'm like what?? She said you have a black eye. I thought she was teasing me! Until my great grandson started crying saying grandma hurt. So I tried to sit up and had a horrible pain in my arm. Something happened to me and I got back to bed and hooked my feeding tube to my pump. I ended up with bruises around my neck, a black eye, a big knot on my head and I crushed my elbow and broke 2 bones in my arm. So that's why I say to never stop it suddenly. I still have no idea what happened. I guess since klonopin has to build up into your system to work that when he took me off a week later I had the accident. But I always take mine when I first wake up and then one midday. Some people get sleepy so they take 1 when they get up and 1 at bedtime. I never get sleepy on it so I don't have to worry about that. But I felt so much better on 1mg 3xday. This dose is not helping me like my original dose was. But doctors here in Florida don't like benzos. It's really sad that they don't care about my quality of life. I'm glad you aren't forced to go lower and put through hell. I hope this helps. I don't understand why if it's working well that they change it 😕